Livy Garcia has a rare disease, and her aunt, wrote ‘Tiger Livy’ to comfort her

Livy has juvenile dermatomyositis, a rare autoimmune disease that can be life-threatening. The disease attacked her muscles, causing them to break down. She was diagnosed at age 5.

Her aunt, Erin Garcia, an English teacher at Clovis West High School, wrote “Tiger Livy” to comfort her.

“Livy plays with her friends, and then I get sick,” Livy said of the book at Vivily Vintage & Handmade, a boutique near Fresno High School selling her aunt’s story, co-authored by writer Betsy Miller.

“And then I have to go to the doctor. … I have to take medicine. I get a shot every week on Friday. … Then I get better and my cheeks are already all the way small again.”

Livy gained weight because of a strong steroid she had to take.

“That was kind of hard, huh?” Garcia asked her niece. “Do you think people sometimes didn’t treat you the same because you looked a little different?”

“Yeah,” Livy responded.

“Did you learn anything from that? If you see someone who looks different, what are you going to do now?”

“I say nice things to them,” Livy said, “and help them and tell them it’s OK that you look different.”

Livy Garcia, center, her aunt Erin Garcia, right, with Clovis North student Ivreese Tong. TNS

As Livy gains weight in the children’s story, she starts to compare her growing stretch marks to tiger stripes. Thinking of herself as a tiger is empowering and helps change her mindset for the better, which supports her healing.

“You do have a lot more power and control than you think,” Garcia said of the power of the mind, “and there’s a lot of scientific evidence that is coming out now that talks about how your mindset is an incredible part of healing.”

Garcia decided to write “Tiger Livy” last year after failing to find a children’s book to help Livy cope with the mental, social, emotional and physical hardships that come along with a chronic illness.

“I would say the main thing for the book was to encourage and especially increase awareness,” Ivreese said, “because you don’t see these kinds of topics in children’s books, especially. I’m just really glad we were able to get it out there in the world.”

Ivreese and Garcia want to start working on another children’s book together later this year.

Garcia hopes “Tiger Livy” also helps children who aren’t sick better understand what kids with an illness are going through.

She compared her niece’s illness to cancer, which can go into remission.

“She’s doing great,” Garcia said of Livy. “She’s definitely on the road to recovery.”

Livy has this message for others suffering from an illness: “Stay brave like the tiger.”

Tribune News Service